ALS Speech Loss: A Comprehensive Guide to Best Communication Aids
ALS speech loss is a common symptom of Amyotrophic Lateral Sclerosis (ALS), which is a progressive neurodegenerative disease [1]. When a person has ALS, they experience a progressive loss of muscle control due to the death of motor neurons. As this happens, individuals face challenges in speech, mobility, swallowing, and even breathing. Unfortunately, there’s presently no known cure for ALS, making these symptoms progressively more debilitating for patients. But, on the up side, several useful communication aids can help mitigate the impact of ALS speech loss.
Importance of Communication Aids for ALS Speech Loss
As ALS progresses, patients lose their ability to express themselves verbally. This has profound implications on their interactions and their quality of life. ALS speech loss can rob individuals of their ability to share their thoughts, desires, and needs, making situations extremely frustrating for them. Yet, it’s essential to remember that while ALS may impede speech, it does not affect a person’s mental faculties. The thinking and reasoning abilities of ALS patients remain intact [2].
ALS communication aids come into the picture here. These are devices designed to help individuals who have lost their speech due to ALS or similar conditions. They serve as an alternative method of communication, enabling patients to express themselves despite speech impairment.
Types of Communication Aids for ALS Speech Loss
Communication aids for ALS speech loss can be broadly split into two categories: low-tech and high-tech devices.
Low-tech devices
Low-tech devices are simple aids without complex electronic features. They include communication boards with letters, pictures or symbols, where a person can indicate their choice using a pointer or by blinking their eyes. These are quite portable and inexpensive but may not be suitable for all due to their limited capabilities [3].
High-tech devices
High-tech devices use modern technology to facilitate communication. Examples include Speech Generating Devices (SGDs) that convert text input into speech. These may be as simple as a tablet with a text-to-speech app or advanced systems utilizing eye-tracking technology [4].
Augmentative and Alternative Communication (AAC) devices are another high-tech option, providing symbol-based communication for individuals unable to type or write. Progress in the area of brain-computer interfaces also promises hope for more sophisticated communication solutions in the future [5].
Finding the Right Communication Aid
When it comes to choosing the right communication aid, it’s crucial to consider the specific needs and abilities of the ALS patient. Factors such as motor skills, eye movement control, and the progression rate of the disease all play essential roles in the decision-making process.
Working with a team of healthcare and communication professionals can significantly ease this process. Speech therapists, occupational therapists, and neurologists can provide valuable input into assessing the patient’s needs and including suitable communication aids.
Some organizations provide comprehensive programs to help ALS patients and their families navigate through the journey. These include the ALS Association [6] and the Muscular Dystrophy Association [7], providing resources and support related to communication aids and other essential services.
Remember, the earlier an individual with ALS starts using a communication aid, the easier it becomes for them to learn and adapt to the device. Therefore, considering communication aids right at the onset of speech loss symptoms can make a significant difference in the patient’s life.
In Conclusion: Reach Out for Help
Learning about ALS speech loss and communication aids is the first step towards helping a person with ALS preserve their voice. If you or a loved one have been diagnosed with ALS and are facing speech loss symptoms, do not hesitate to reach out.
Call us at 702-385-6000 or visit our contact page on our website to inquire about your ALS and Real Water case. Additional informative articles like this one are available for you to read through our blog page. Do explore these resources and reach out for the support you need.
References:
[1]. ALS Association. “What is ALS?”: www.alsa.org/about-als/what-is-als.html
[2] National Institute of Neurological Disorders and Stroke. “Amyotrophic Lateral Sclerosis (ALS) Information Page”: www.ninds.nih.gov/Disorders/all-disorders/amyotrophic-lateral-sclerosis-als-information-page
[3] Therapy Box Speech Apps. “Apps for AAC”: www.therapy-box.co.uk/aac_apps
[4] Tobii Dynavox. “Communication devices for everyone”: www.tobiidynavox.com/devices/overview/
[5] The BCI Society. “About the BCI Society and BCIs”: www.bcisociety.org/about-the-bci-society-and-bcis/
[6] ALS Association. “ALS support programs”: www.alsa.org/community/als-assistive-technology.html
[7] Muscular Dystrophy Association. “Services and support”: www.mda.org/services-and-support
