ALS Independence Loss: A Heartbreaking Patient Struggle Revealed
ALS independence loss often marks the beginning of a deeply personal and arduous struggle for many patients diagnosed with this debilitating condition. ALS, short for amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease, is a progressive neurodegenerative disorder[1]. It results in the loss of motor neurons; this affects voluntary muscle movement, ironically taking away the power to control one’s own body, right from restricting mobility to even breaching the barrier of communication.
The Impact of ALS Independence Loss
For ALS patients, the journey through the course of the disease might seem like a hard-to-scale mountain with treacherous terrain. Independence, a trait so inherent to human existence, is unexpectedly snatched away from them. The hardest part is perhaps the distancing from the life they once knew, the life where they were active and self-dependent.
As the effects of ALS start to take its toll, simple activities like walking, eating, and even speaking can become draining. Gradually, ALS patients may require full-time assistance[2]. The nights and days turn into an endless stream of dependence characterized by the need for help in performing routine tasks such as cooking, cleaning, and personal hygiene.
Additional Struggles Faced By Patients Diagnosed with ALS
Beyond the physical setback, the emotional turmoil experienced by ALS patients is also noteworthy. The constant need for assistance can take a toll on the patient’s mental and emotional health as feelings of frustration, anxiety, and depression may set in. It is a constant struggle, not only with the disease but with oneself and sometimes even with loving caregivers, as individuality and self-reliance may seemingly evaporate.
Moreover, ALS does not stop at confining the body; it also challenges the mind. Cognition and behavior might be affected in ALS, and there is evidence suggesting that ALS and frontotemporal dementia may present overlapping syndromes[3].
Supporting Those Experiencing ALS Independence Loss
Understanding the ALS patient struggle is crucial for lending support. This support extends beyond medical assistance and makes a world of difference. It can be achieved by creating a safe and stimulating environment that emphasizes preserving remaining abilities and encouraging the participation of patients in decisions concerning their care.
Considerations must be given to their mental health care as well, which is often overlooked due to the physical symptoms. Psychological support could include cognitive behavioral therapy or other psychology-based methods. Implementation of effective coping strategies can also contribute to minimizing the impact of ALS independence loss[4].
Furthermore, using adaptive aids can help individuals maintain their sense of independence for a significantly longer period. For instance, mobility aids can provide easier transportation and specially adapted communication devices can facilitate conversations.
Endnote
In the face of a devastating disease like ALS, maintaining autonomy as much as possible could potentially improve the quality of life for the affected individuals. It is important for those affected to remember they are not alone, and support is available.
No one should navigate this difficult journey alone. If you or a loved one is battling ALS or if you believe you have a legal case pertaining to Real Water, we welcome you to reach out. Visit our contact page to connect with us, or call us at 702-385-6000. Furthermore, you can find more helpful and informative articles on our blog page.
We are here to help you, every step of the way.
References:
1. Cleveland Clinic (n.d.). Amyotrophic Lateral Sclerosis (ALS). [online] Cleveland Clinic. Available at: https://my.clevelandclinic.org/health/diseases/12114-amyotrophic-lateral-sclerosis-als [Accessed 15 Jun. 2021].
2. Living with ALS (2019). Care and Support. [online] als.org. Available at: https://www.als.org/navigating-als/resources/care-and-support [Accessed 15 Jun. 2021}.
3. Mayo Clinic (2020). ALS and Frontotemporal Dementia. [online] Mayo Clinic. Available at: https://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/expert-answers/als-frontotemporal-dementia/faq-20458861 [Accessed 15 Jun. 2021].
4. Oliver, D. (2016). Psychosocial care in ALS. Amyotrophic Lateral Sclerosis. 8, pages 1-6.
