Early palliative ALS, an initiative that integrates palliative care right from the time of diagnosis, can change the trajectory of Amyotrophic Lateral Sclerosis (ALS) patient care. This approach, when executed by an experienced symptom management team, can greatly enhance the quality of life of patients while effectively managing the symptoms of this progressive neurodegenerative disease. (1,2)
Role of Early Palliative ALS in Patient Care
While an ALS diagnosis can indeed be an emotionally overwhelming experience, early palliative ALS can help in shifting the focus towards improving the life quality of patients. Rather than adopting a curative approach, this outlook revolves around transitioning to symptom management and preparing patients and their caregivers for the course of the disease.
Early palliative ALS is a testament to the evolution of palliative care, which initially caters to terminally ill patients. Today, it aims not just to enhance the patient’s end of life experience, but also to optimize their current quality of life. Thus, engaging with a symptom management team as soon as possible is crucial to ensure comprehensive care.
The Essential Symptom Management Team
The symptom management team forms the core of the early palliative ALS approach. This team majorly comprises physicians, nurses, social workers, nutritionists, and a psychologist. Each professional plays a distinct yet integrated role in efficiently managing the patient’s ALS journey (3).
Recognizing the Symptoms
Identifying and addressing the symptoms at the earliest is central to the effective management of ALS. The symptom management team ensures timely detection of subtle changes or newly surfacing symptoms.
Providing Appropriate Intervention
According to the patient’s evolving needs, the team ensures that the right intervention is delivered at the right time. This can range from recommending specific dietary modifications to suggesting physiotherapy exercises or proposing psycho-social counseling (4).
Accommodating Individual Preferences
Understanding and respecting the individual’s specific needs, desires, and fears is a key attribute of any symptom management team. By inculcating the patient’s wishes into the care plan, the team can provide personalized solutions, boosting the patient’s morale (5).
The Impact of a Symptom Management Team in Early Palliative ALS
Adequate symptom management can make a significant difference in the lives of ALS patients. Role of these professionals in early palliative ALS involves ensuring that the objectives of care are not just clinic-centric but are focused on longevity and quality of life.
Moreover, the extended support and reassurance provided by an expert symptom management team can go a long way in alleviating the mental and emotional strain experienced by ALS patients and their caregivers.
Final Thoughts
In conclusion, early palliative ALS, backed by a dedicated symptom management team, can redefine victory in the context of ALS. Victory, in this situation, does not imply curing the disease but achieving a state of comprehensive well-being despite the disease.
So if you or your loved one have been diagnosed with ALS, do not hesitate to seek the support of a symptom management team. This interdisciplinary group of professionals can help manage symptoms, improve quality of life, and provide emotional and psychological support throughout the journey.
Explore our blog for more insights related to ALS and palliative care or contact us to learn more about how we can assist with your ALS and Real Water case. If you need immediate assistance, call us at 702-385-6000.
References
– National Institute of Neurological Disorders and Stroke. Amyotrophic Lateral Sclerosis Information Page. Link
– Oliver D, Borasio GD, Caraceni A, et al. A Consensus Review on the Development of Palliative Care for Patients with Chronic and Progressive Neurological Disease. Link
– Bede P, Oliver D, Stodart J, et al. Palliative care in Amyotrophic Lateral Sclerosis: a review of current international guidelines and initiatives. Link
– Hardiman O, Al-Chalabi A, Chio A, et al. Amyotrophic lateral sclerosis. Link
– Paganoni S, Borasio GD. Palliative Care in Amyotrophic Lateral Sclerosis. Link