Helpful things to say ALS patients start from comprehension and genuine empathy. A diagnosis of Amyotrophic Lateral Sclerosis (ALS) can be scary and life-changing, not only for the person diagnosed but also for their loved ones. Understanding the best ways to empathize, respond, and communicate effectively is essential in offering support to someone living with this condition. In this article, we’ll explore helpful things to say ALS patients, and how to avoid using unhelpful phrases.
Effective Communication: Helpful Things to Say ALS

Engaging in meaningful communication can be instrumental in the person’s journey with ALS. It helps in building a supportive environment and allows the person living with ALS to express their feelings and fears, making them feel heard and understood. Here are some examples:
1. Express Your Availability: Let them know you are there for them, willing to listen whenever they are ready to talk.
2. Provide Affirmation: Validating their feelings and emotions can help make them feel understood; phrases like ‘I can see this is really difficult for you,’ can go a long way.
3. Be Encouraging: Instead of false hope, offer phrases that show your belief in their strength such as ‘I believe in your resilience and strength during these challenging times.’
4. Show Empathy: Instead of simply feeling sorry for them, show recognition of their struggle and give comfort in any way you can.
Limit the Use of Unhelpful Phrases
Equally important to knowing what to say is understanding which phrases can come off as hurtful or unhelpful. Suggestions that downplay the severity of ALS or convey a sense of pity rather than empathy might be detrimental to the person’s emotional well-being. Avoid using phrases like ‘there could be worse diseases to have’, or ‘you seem to be handling it well’, which come off as dismissive or ignorant of their struggle, feelings and concerns.
Offering Real Solutions
Supporting someone with ALS goes beyond words. It also involves taking action to assist them in managing their condition. Real solutions may range from taking them to medical appointments, helping with physical tasks, or supporting their legal rights. For instance, recent cases have linked a product known as Real Water with the development of ALS¹. Moving forward from mere talks to aiding the person in seeking legal redress could make a significant difference.
References
¹Real Water linked to non-viral hepatitis
Wrapping Up
Remember, while it’s crucial to know the helpful things to say ALS patients, actions often speak louder than words. Demonstrating empathy, understanding, and practical support can make a world of difference for a person living with ALS.
If you or a loved one has been diagnosed with ALS and has had previous consumption of Real Water, we urge you to reach out about your ALS and Real Water case immediately. We are here to provide immediate assistance and help you navigate this complex situation. For more informative content relating to ALS and Real Water, feel free to browse our blog. If you require immediate assistance, don’t hesitate to call us at 702-385-6000.